DonateLife Week 2017 - Jesse Vincent Story

By Jesse's mother.
It’s the old saying – ‘It won’t happen to me!’ Up until a little over a year ago we too as a family were living a relatively normal life here in beautiful Valla Beach, a part of the Nambucca Valley community. That was until March 17, 2016 when our lives changed forever. On this day our son Jesse, a talented athlete, was diagnosed with possibly the most lethal cardiomyopathy known- a symptom of Danon disease (a rare form of Muscular Dystrophy). A genetic disease so rare that to this day we know of only 3 other families in Australia currently diagnosed. Jesse has a heart 3-4 times larger than normal and is at a high risk of sudden cardiac arrest. Jesse was placed on the heart transplant waiting list in April, 2016 & due to a shortage of big male hearts, fifteen months later we await his second chance and ‘gift of life’.
Jesse has a younger brother Jake, 12 years old & cardiomyopathy has started in him too! Inevitably he too will be in need of a cardiac transplant in a few short years!
So you see, it can and does happen to everyday families!
With Donatelife week just around the corner, Sunday 30th July, 2017 – Sunday 6th August, 2017, I encourage families to talk about organ donation now, to let each other know what their wishes are, so that should an unexpected tragedy occur everyone knows the wishes of the loved one!
One organ donor can transform the lives of up to 10 people!
And it’s now so easy to register @
It only takes five lines & a couple of minutes to save someone’s life

New Equipment Arrives just in time for International Day of People with Disability

Members of Nambucca Shire Council’s Access Committee, joined staff of Macksville Memorial Aquatic and Fitness Centre and local swimmer, Kerry Sanders to mark for International Day of People with Disability.

NSW Government Office of Sport - Communities

Sport and Recreation offers a range of services and support in NSW to promote an active and healthy lifestyle. From training programs to grants, we work closely with individuals to build strong, inclusive and active communities.

Arts Mid-North Coast

Arts Mid North Coast is the peak body for arts and cultural development across the Mid North Coast region. We are a regional non-profit, incorporated organisation, and part of a state network of 13 Regional Arts Boards that provide the framework for arts and cultural development across regional and rural NSW.

Australian Sports Commission - Local Sporting Champions

Grants to help young people pursue their sporting dreams. Young people find it difficult to meet the ongoing and significant costs associated with participation at sporting competitions, particularly those from regional areas.

Australian Government Department of Health - Physical Activity and Sedentary Behaviour Guidelines

This page contains Australia’s Physical Activity and Sedentary Behaviour Guidelines including links to brochures, a summary fact sheet for each of the guidelines, tips and ideas for how to be physically active, as well as evidence review reports.

The Annual Macksville Show

The Macksville Show is one of the premier agricultural and entertainment events on the mid north coast of New South Wales. The show attracts exhibitors from all over plus the local Nambucca Valley community.

Heart Foundation Doorknock Appeal September 2017

Heart Foundation Doorknock Appeal September 2017, funding lifesaving heart research, and working towards improving heart disease prevention and care for all Australians