DonateLife Week 2017 - Jesse Vincent Story

By Jesse's mother.
It’s the old saying – ‘It won’t happen to me!’ Up until a little over a year ago we too as a family were living a relatively normal life here in beautiful Valla Beach, a part of the Nambucca Valley community. That was until March 17, 2016 when our lives changed forever. On this day our son Jesse, a talented athlete, was diagnosed with possibly the most lethal cardiomyopathy known- a symptom of Danon disease (a rare form of Muscular Dystrophy). A genetic disease so rare that to this day we know of only 3 other families in Australia currently diagnosed. Jesse has a heart 3-4 times larger than normal and is at a high risk of sudden cardiac arrest. Jesse was placed on the heart transplant waiting list in April, 2016 & due to a shortage of big male hearts, fifteen months later we await his second chance and ‘gift of life’.
 
 
Jesse has a younger brother Jake, 12 years old & cardiomyopathy has started in him too! Inevitably he too will be in need of a cardiac transplant in a few short years!
 
So you see, it can and does happen to everyday families!
 
With Donatelife week just around the corner, Sunday 30th July, 2017 – Sunday 6th August, 2017, I encourage families to talk about organ donation now, to let each other know what their wishes are, so that should an unexpected tragedy occur everyone knows the wishes of the loved one!
 
One organ donor can transform the lives of up to 10 people!
 
And it’s now so easy to register @ donatelife.gov.au
 
It only takes five lines & a couple of minutes to save someone’s life
 
DISCOVER – DECIDE – DISCUSS

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Heart Foundation Doorknock Appeal September 2017

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